Darien residents cycle to raise multiple myeloma awareness
Darien native Anne Burleigh and her husband Jon will be participating in the Multiple Myeloma Research Foundation’s Road to Victories cycling event. Anne and many others throughout the country will be riding up to 246 miles across Utah’s National Parks over the course of six days to raise funds for critical myeloma research.
Anne has been training and said, “I’ve always liked the cycling goal and a challenge. I think this is the beginning of the road to conquering multiple myeloma and finding a cure.”
Anne was diagnosed in 2016 at the age of 57 in what she said was “by accident. I was going to the doctors to start the process of getting a knee replacement and through the blood work they found some anomalies and we had to dig into why the blood work wasn’t quite right and through that process found out I have multiple myeloma. You could’ve knocked me over with a feather, I had no idea.”
She then went on to explain why she is participating in this event. “One of the reasons I’m doing this really is to show people that, even though for multiple myeloma there is not a cure for it, it’s a very manageable disease and hopefully the patients on our trip show other patients that you can live a very full life even with the diagnosis.”
Anne described Road to Victories as “a group that provides three different endurance events to raise awareness and raise funds for cancer research for multiple myeloma. The event will hopefully provide great education to doctors, patients, caregivers all around the country and the best way to find a cure for multiple myeloma is through raising funds for cancer research. So that’s what we really want to do is accelerate the process of finding a cure for multiple myeloma.”
She continued, “Anybody will be able to donate to our rides through roadtovictories.com and through #roadtovictories on social media where they’ll be able to look at what we’re doing and donate to the cause.”
Burleigh explained the importance of funding and awareness, saying, “I think for all cancer treatments researching and funding are key. One of the most important things that needs to happen is more collaboration between different institutions and multiple myeloma research is in the forefront of that. They have a collaboration with Harper Business School and other institutions across the country and the globe. So collaboration is really an important aspect for finding a cure for cancer.”
She added, “It is a rare disease and we would like to have people aware of symptoms and if you are diagnosed early, outcomes are much better.”
For information on Road to Victories, visit www.RoadToVictories.com.